Health and Human Services Secretary Robert F. Kennedy Jr. attracted discover — and in some quarters, outrage — for remarks about autism, a subject he’s clashed with scientists about for years.
Kennedy held an April 16 press conference pegged to a brand new Centers for Disease Control and Prevention report that discovered the prevalence of autism rising to 1 in 31 amongst 8-year-olds, the most recent in a collection of will increase in current many years.
Kennedy stated “autism destroys families” and is an “individual tragedy as well.”
Kennedy stated many autistic kids have been “fully functional” and had “regressed” into autism “when they were 2 years old. And these are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a toilet unassisted.”
He additionally stated: “Most cases now are severe. Twenty-five percent of the kids who are diagnosed with autism are nonverbal, non-toilet-trained, and have other stereotypical features.”
Medical specialists, together with folks on the autism spectrum, instructed PolitiFact that Kennedy’s portrayal was skewed. A 2023 examine written by CDC officers and college researchers discovered that one-quarter of individuals on the autism spectrum have extreme limitations. But that is on the excessive finish of research, and many individuals in that one-quarter of the autism inhabitants should not have the constraints Kennedy talked about.
The overwhelming majority of individuals on the spectrum should not have these extreme challenges.
“I wish he would spend some time with parents of other autistic children, and well-regarded scientists who have studied this condition for decades,” stated David Mandell, a University of Pennsylvania psychiatry professor and director of the Penn Center for Mental Health. “He has a fixed, myopic view.”
The Department of Health and Human Services didn’t present knowledge on what share of individuals with autism diagnoses are unable to do the issues Kennedy described.
“Secretary Kennedy remains committed to working toward a society where people with autism have access to meaningful opportunities, appropriate supports, and the full respect and recognition they deserve,” division press secretary Vianca N. Rodriguez Feliciano instructed PolitiFact. “His statements emphasized the need for increased research into environmental factors contributing to the rise in autism diagnoses, not to stigmatize individuals with autism or their families.”
The Washington Post reported that an HHS spokesperson stated Kennedy “was referring to those that are severely affected by this chronic condition” and that “this was in no way a general characterization.”
We took a better have a look at the accessible knowledge and analysis.
What Is Autism Spectrum Disorder?
At root, “autism is a difference in how your child’s brain works that shapes how they interact with the world around them,” based on the Cleveland Clinic. People with autism diagnoses, the clinic says, “may excel more in certain areas and need more support in other areas compared to their neurotypical peers.”
Over the years, autism’s definition and analysis has modified.
In the Nineteen Fifties and Nineteen Sixties, “it is very likely that many people with profound autism were misdiagnosed with ‘mental retardation,’ a term in use at the time, or schizophrenia, while other autistic people probably got no diagnosis at all,” stated John J. Pitney Jr., a Claremont McKenna College politics professor, creator of the e book “The Politics of Autism: Navigating the Contested Spectrum,” and a father of an autistic son who’s about to graduate from school.
In more moderen many years, the diagnostic standards for autism have broadened, producing a spectrum starting from extreme impacts to extra modest ones. Today’s definition encompasses “individuals with milder symptoms, stronger language skills, and higher IQs,” stated Christopher Banks, president and CEO of the Autism Society of America.
How Common are the More Limiting Forms of Autism?
Autism’s expanded definition means a minority of individuals on the spectrum have the sorts of extreme limitations Kennedy cited, although it’s arduous to say what number of.
The highest whole we discovered comes from a 2023 federal report, written by CDC officers and college researchers. It discovered that 26.7% of 8-year-olds with autism had “profound” autism, a newly framed (and never universally accepted) definition that included kids who have been nonverbal, have been minimally verbal, or had an IQ beneath 50. (“Average” IQ is taken into account 90 to 109.)
People with profound autism “will require lifetime, round-the-clock care,” stated Judith Ursitti, co-founder and president of the Profound Autism Alliance, a nonprofit. Ursitti stated her 21-year-old son “is not headed towards employment or a career in poetry or baseball. Acknowledging this fact is important, as this population is often excluded from media portrayals and research.”
Other estimates are decrease.
A study published in 2024, by researchers on the University of Utah and Children’s Hospital of Philadelphia, checked out 1,368 U.S. kids with autism. When mother and father have been requested whether or not they would characterize their little one’s autism as “severe,” 10.1% stated sure. Among this group of kids with “severe” autism, a minority — 38% — have been labeled as having a “severe” mental incapacity.
“Even among those with an intellectual disability, there’s huge variability,” Mandell stated. “People with Down syndrome have an intellectual disability but often are quite capable and can do all the things RFK points to.”
The CDC printed data in 2020 exhibiting that 42% of individuals with autism had an IQ within the common or larger vary, and another study has discovered that this determine might be as excessive as 60%.
Zoe Gross, the director of advocacy on the Autistic Self Advocacy Network, stated restricted accessible knowledge means that Kennedy’s characterization is exaggerated.
Gross, who’s on the spectrum herself, stated a 2017 study discovered that 61% of individuals on the spectrum who have been studied have been employed. As for baseball, the Special Olympics, which was based by Kennedy’s household and consists of rivals who’re on the spectrum, includes softball. At least two individuals who performed main league baseball, Tarik El-Abour and Jim Eisenreich, have been public about their autism diagnoses.
Gross stated there isn’t a official knowledge on autistic poets, however she was conscious of the poet DJ Savarese, a nonspeaking however extremely literate advocate. Gross was additionally unable to seek out knowledge on relationship, however she stated she’s married, and he or she pointed to the Netflix actuality present “Love on the Spectrum,” which follows autistic folks’s relationship lives. It is now in its third season.
As for not utilizing a rest room unassisted, the 2024 examine that analyzed 1,368 U.S. kids with autism and located that 10.1% have been thought of “severe” discovered that 67% of these within the “severe” class had hassle bathing or dressing, which, if generalizable to your complete autistic inhabitants, could be lower than 7%. Another study discovered urinary incontinence reported by 12.5% of the autistic folks studied and fecal incontinence by 7.9%.
Eric M. Garcia, who’s on the spectrum and who has written the e book “We’re Not Broken: Changing the Autism Conversation,” was protecting Kennedy’s remarks as Washington bureau chief of The Independent. Hearing his phrases “felt so demoralizing,” Garcia instructed PolitiFact. “A lot of people will respond by saying, ‘He didn’t mean autistic people like you.’ But that doesn’t make it any better.”
PolitiFact workers author Madison Czopek contributed to this text.
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